Trinket’s blog~ it happened again:(
Wed ,22/07/2009Hi Kiddies…
Last night I had another very scary seizure



Mamma here~ After last night’s episode I am sure now that “Event” at 3 in the morning two nights ago was a seizure. OK they are getting a bit weird and terrifying for me and for her and she has awareness through them which is I think is a bit wierd since all my reading suggested they don’t. My heart just breaks for her. last night she cried out and screamed through the whole thing. I thought again she was dying, I didn’t know what was going on. Again she started clawing like she wanted to just run full speed, but of course she can’t. Her eyes were huge and her mouth was open and she was so wet around the mouth, at first I thought she was choking again but we had finished her syringe feeding over a half hour before. I thought she couldn’t breath, I don’t know for sure but it reminded me so much of Minnie when she had her heart attackt (and we thought she was choking then) so I grabbed her and started patting her back and then her chest firmly, not too hard, but I didn’t know what else to do. I was lost I just held her and kept patting her chest trying not to cry and saying NO no no no no, all the while she let out this crying sound very much like a bunny scream but it had no power it it was so weak. and then the horrible tooth grinding started. She had her Tramadol an hour before so it should have been working and she shouldn’t have been in pain to set it off, but I just don’t know. When it was done and it took a minute or so that felt like an hour she was limp and was breathing hard again. I lay back with her on my chest and shoulder for a long while until she calmed enough I figured she was going to survive.
Even this morning she is very quite and weak, these things are really taking a lot of her. I know I am so numb and terrified for her having to go through these horrible things. I don’t know how these other E.C. buns and thier Mom manage to endure these things with their sanity intact. How do you bare it? “sigh” I have no faith on putting her on the pheonbaribitol? I think that’s it, I’ve just read so much about it not working so well and the side effects are harsh, so I will try it soon though, but first I want to try something radical again. She has survived two of what I consider major seizures, she doesn’t get the full body thing, it seems its mostly in her head. Anway I did more searching and found reference in dogs to using three particualr homeopathic remedies together that seem to work, how well I have no idea, but I KNOW the one I have her on for kidney did work and does still work so I am willing to try it for a few days and see what happens. Right now she seems to be on a every 2 day cycle of getting a seizure. I’ve already upped her herb, it did seem to be doing it in the begining but things are definately accelerating. I’ll get the remedies this afternoon right after I finish her breakfast feeding and we’ll see, if she can go several days without a seizure I feel it will have worked, but if she has two more I’ll put her on the pheobarbitol.
The other thing that is strange is that she only has these things in the night, after 11 pm and the latest one was at 3am, but mostly around 11ish, this blows my mind, but when researching the homeopathics, one of them is specified for nighttime seizures~ go figure. Her med schedual is based on a 12 hour rotation so if it was med induced I’d think she’d have them during the day as well.
She is loudly chompin on some greens right now (again not enough to amount ot much, but I grateful for every mouthful she does take), she is finally starting to look a bit better. Yesterday she seemed very tired all day long, I wonder if her condition is a precurser to the seizures, I don’t know, I don’t anything anymore. I haven’t gotten anymore of the herb for her, I wanted to see if we managed the pain with the Tramadol if she would eat a similar amount and so far I’d say so (maybe sort of, again I don’t know what I’m doing any more..), now if we can just get this seizure thing better controled. (crap, now she is just sitting on her salad, the chompin didn’t last long
*I’d be grateful for any imput about the typical seizure meds that any of the E.C. bun Moms can tell me, I seem to have it in my head that it doesn’t really work. How long do they go on like this? How often are the seizures typically?
I’m barly holding on to a shred of sanity, well at least I’m calmly going insane.



